Sunday, May 20, 2012

Update on Finn

So here we are, almost a year to the day that we started trying to find out what was going on with Finn.  The "crisis" moment happened last year on my birthday (6/9) when Finn had what looked like a seizure, but it had really started a few months earlier when we noticed he was very floppy and not growing well.  The following months were scary as we learned in detail what his heart condition was and we were finally sent to Children's Hospital to see genetics.  Then even more waiting as we waited almost 4 months for results and finally a diagnosis.

Well here is where our sweet, amazing, silly and fun little guy is now as he nears 18 months old.  He walks beautifully and even jumps well.  He loves to climb and has great muscle control given his poor muscle tone.  He eats a ton and has filled in nicely which makes his skin look much less saggy and loose, and my little peanut who a year ago was not growing at all is simply HUGE. He is starting to say a few words, but is still lagging behind in speech, but we are working on it.  He does communicate well, he points and grabs and lets us know his feelings.  We can tell he is bright and his therapist believes his speech delays to be either due to muscle tone in his mouth or possibly some hearing issues, so we will follow up with audiology in June.  We also will see genetics this summer and pulmonology as well as cardiology.  Lots of appointments, but they will help us see what is going on with Finn and allow us to make choices or get help if needed before a real problem presents.  His condition is one where things can go wrong with organs slowly over time. My goal is to catch it at the first sign and not wait until he is really sick. The earlier, the better.

I am so thankful to have all my children, to be blessed to have a houseful of kids and the privilege of caring for them.  I am excited to see them all grow up and become the men and women they were meant to be.

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