tag:blogger.com,1999:blog-8827511044337889775.comments2023-11-05T04:08:10.699-05:00Raising the TribeTribe Mamahttp://www.blogger.com/profile/00569405648904949890noreply@blogger.comBlogger636125tag:blogger.com,1999:blog-8827511044337889775.post-55551167261755236952012-11-29T10:48:00.455-05:002012-11-29T10:48:00.455-05:00This comment has been removed by a blog administrator.Bali Hotelshttp://www.balinesehotel.comnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-25345210708825947842012-11-13T03:42:13.861-05:002012-11-13T03:42:13.861-05:00Great blog and post, keep it up i will be subscrib...Great blog and post, keep it up i will be subscribing to your feed!High School Diploma Onlinehttp://www.sandfordhighschool.com/noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-75219017645880730562012-07-15T17:47:24.361-04:002012-07-15T17:47:24.361-04:00Happy birthday, beautiful!Happy birthday, beautiful!Christinenoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-90582259437741678142012-05-27T19:44:42.086-04:002012-05-27T19:44:42.086-04:00Happy birthday, Haven!Happy birthday, Haven!Christinenoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-44317255036772720352012-04-26T21:00:09.846-04:002012-04-26T21:00:09.846-04:00I completely agree with Casey. If there is no path...I completely agree with Casey. If there is no path, make your own. I can't relate to Finn's disorder, but I can relate to my own. Back when I was diagnosed with diabetes in 1985, there was no community support. Over the years, a woman, near my age, started her own blog about her diabetes. Her name is Kerri Sparling and her website is www.sixuntilme.com. Her blog now has THOUSANDS of followers and she has made a career of it. While type I diabetes is FAR more common that what Finn has, I'm sure that you could garner much support from those out there who also have it. You have an amazing support system of people who care about you and your children. Maybe reaching out to the world via the world wide web will help you receive more advice and support from people who truly understand what you are going through. Hugs and prayers to you. I know this must not be easy.Christine Deppennoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-21918626360601095352012-04-24T19:35:42.367-04:002012-04-24T19:35:42.367-04:00I think you should start a support group for paren...I think you should start a support group for parents. If you are looking for something, then it stands to reason there are at least 49 other parents looking, too.<br /><br />Start a page on FB and see what happens. I think it would be a great thing for you to do!Caseyhttps://www.blogger.com/profile/15543461344197186456noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-17330889208670167922012-03-31T09:18:50.788-04:002012-03-31T09:18:50.788-04:00love this update :)love this update :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-58590012062911616312012-03-08T10:47:16.230-05:002012-03-08T10:47:16.230-05:00Hey - I have another friend who is experiencing me...Hey - I have another friend who is experiencing medical mysteries with her daughter. Hives are a recent thing that has developed. I thought maybe you two could offer virtual support to each other and maybe....between two smart moms, can help figure out what is happening with the kids.<br /><br />Here is her blog: http://www.diagnosisurine.com/2012/03/apparently-i-am-experiencing-roller.html I've known Jenn since she was pregnant with Athena.<br /><br />Habg in there!Caseyhttps://www.blogger.com/profile/15543461344197186456noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-14960695182637472922012-02-21T15:20:09.081-05:002012-02-21T15:20:09.081-05:00Good luck! I know what you mean! We had Carter&#...Good luck! I know what you mean! We had Carter's crib in our room for 2 years. We put all the boys together when we got the older 2 bunk beds. We sqitched rooms and left Carter in our old room (now the boys new room). It is workingout wonderfully. Carter goes to bed a little later but ....what can you do?!Jenniehttps://www.blogger.com/profile/10409904852301662472noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-24095473413136425762012-02-07T01:52:27.912-05:002012-02-07T01:52:27.912-05:00I would like to tell you that you have given me mu...I would like to tell you that you have given me much knowledge about it. Thanks for everything. Keep Blogging!<br /><br />- Jackie of <a href="http://www.webteamasia.com" rel="nofollow">web design</a>Jackiehttps://www.blogger.com/profile/10285160407825461242noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-73520580892039524062012-02-06T19:27:28.095-05:002012-02-06T19:27:28.095-05:00You are the prime candidate for , I don't know...You are the prime candidate for , I don't know how she oes it!"<br />Most don't have a quarter of your drive! It's inspiring...thinking of you! Hang on!!!Queentobhttps://www.blogger.com/profile/17983882638954348108noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-17139558310521824362012-02-05T03:04:58.522-05:002012-02-05T03:04:58.522-05:00Good luck ....life can be really tough. Hang on in...Good luck ....life can be really tough. Hang on in there ...we are all rooting for yousuenoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-87663120362094789362012-01-15T00:50:54.048-05:002012-01-15T00:50:54.048-05:00Keep your chin up, remember that when you get to t...Keep your chin up, remember that when you get to the end of your rope ....just tie a knot and hang on Enjoy reading your blog. Greetings from the UK. SueAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-17094276530835144782012-01-10T13:04:19.230-05:002012-01-10T13:04:19.230-05:00I got it worked out! Thanks :)I got it worked out! Thanks :)Hazel Nuthttp://ourhappynuthouse.comnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-70349251081646516502012-01-10T12:51:33.622-05:002012-01-10T12:51:33.622-05:00Let me know if you need me to do anything on my en...Let me know if you need me to do anything on my end and thanks for the positive thoughts for Finn :)Tribe Mamahttps://www.blogger.com/profile/00569405648904949890noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-14534686452681350732012-01-10T12:49:50.184-05:002012-01-10T12:49:50.184-05:00Thanks for joining me this week!
There is a litt...Thanks for joining me this week! <br /><br />There is a little glitch in my link up & your link is not showing, working on figuring out why it is not showing.<br /><br />I hope Finn has a good cardio check up!! Will be thinking of him <3Hazel Nuthttp://ourhappynuthouse.comnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-75348333861052469952011-08-20T15:15:24.011-04:002011-08-20T15:15:24.011-04:00Anon-I had not heard of mitochondrial disease. I ...Anon-I had not heard of mitochondrial disease. I looked at the info and some of it is a good fit. I will definitely keep it in mind to discuss with his doctors should the testing not show the elastin deficiency they are suspecting. Thanks so much, it really helps to have other avenues I have not explored.Tribe Mamahttps://www.blogger.com/profile/00569405648904949890noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-5447090620254098182011-08-18T14:39:40.279-04:002011-08-18T14:39:40.279-04:00have you heard of Mitochondrial disease? Some of ...have you heard of Mitochondrial disease? Some of his symptoms sound similar to the children in other blogs I read.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-27371189302800564542011-08-18T11:18:39.484-04:002011-08-18T11:18:39.484-04:00Thanks Anon, and I am sorry that you are going thr...Thanks Anon, and I am sorry that you are going through testing too, it is so hard to be patient and wait for results. Hoping for a quick diagnosis for you! We are pretty sure it is not Marfan, he is actually really small-closing in on 10% percentile and falling and his cardiologist said his defects are not the ones associated with Marfan. Ehlers-Danlos is what I am thinking they may be looking towards. He is not classic to any of the six main groups, but he is flexible, low muscle tone and he has that velvety skin. His heart conditions are also not classic for E-D, BUT familial SVAS would make sense since I have it. Ugh...confused, but thanks for the ideas, I really appreciate it!Tribe Mamahttps://www.blogger.com/profile/00569405648904949890noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-1753537031763670072011-08-17T18:26:17.337-04:002011-08-17T18:26:17.337-04:00I'm sorry. Nothing is worse than a sick child....I'm sorry. Nothing is worse than a sick child. I am currently being worked up for connective tissue issues by a genetist at Johns Hopkins. Some similar traits, but connective tissue disorders can manifest themselves in so many unique ways. Check out Ehlers-Danlos Syndrome or Marfan and see if it fits. It's a hard process and I respect your tenacity to find an answer!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-49077607156794328342011-08-02T18:05:45.206-04:002011-08-02T18:05:45.206-04:00I read you. Every post. I also stole a line that...I read you. Every post. I also stole a line that you wrote and created a little post of my own over on my blog. I loved it! The line? "... as a blog is a mere glimpse into our lives, not a moving picture of every blessed and damned moment."<br /><br />Amen to that!Caseyhttps://www.blogger.com/profile/15543461344197186456noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-41089014211693182352011-07-10T19:59:00.436-04:002011-07-10T19:59:00.436-04:00Super busy is right?! Who had time to be tired? So...Super busy is right?! Who had time to be tired? Sounds like a lot of good quality family time :)Queentobhttps://www.blogger.com/profile/17983882638954348108noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-43190437323995729752011-06-20T08:25:20.374-04:002011-06-20T08:25:20.374-04:00Hi Tribe Mama, Nice blog you got here! try visit m...Hi Tribe Mama, Nice blog you got here! try visit my new post: <a href="http://hapiblogging.blogspot.com/2011/06/blog-seo-tutorial-how-to-choose-best.html" rel="nofollow">Blog SEO Tutorial: How to Choose the Best Title For Post</a>. I hope you will learn something from it. Have a great day!hapihttps://www.blogger.com/profile/12643951037231861939noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-62768681464894759372011-06-10T01:20:30.859-04:002011-06-10T01:20:30.859-04:00Oh my gosh!!! This is terrifying!!! I am holding...Oh my gosh!!! This is terrifying!!! I am holding you both in my thoughts and prayers. Please let me know how tomorrow goes.<br /><br />Love to you!!Caseyhttps://www.blogger.com/profile/15543461344197186456noreply@blogger.comtag:blogger.com,1999:blog-8827511044337889775.post-35599625222484553542011-06-03T22:17:46.411-04:002011-06-03T22:17:46.411-04:00Ugh! Sounds like a rough trip, and a rough couple ...Ugh! Sounds like a rough trip, and a rough couple of days! I hope everyone is feeling better soon. Thank goodness it is the weekend.<br /><br />I will be thinking of you and your family & sending prayers.Hazel Nuthttp://ourhappynuthouse.com/noreply@blogger.com